Involving people who are effected by deafness in Brighton and Hove

December 12, 2017

Over the past few months we have had the privilege of working with people from the D/deaf communities across Brighton and Hove.

Brighton and Hove Clinical Commissioning Group (CCG) and Brighton and Hove City Council (BHCC) wanted to understand the views of people who are deaf; people who are hard of hearing; people who are deafened and people from within and across the Deaf Community. The Head of Participation and Voluntary Sector Partnerships from the CCG and the Communities Equalities and Third Sector Team from the Council commissioned Patient and Public Involvement to build on and develop further work on deaf engagement with the D/deaf community.
The first event was aimed at making sure the NHS and Council provide equally as good services for people who are deaf; people who are hard of hearing; people who are deafened and people from within and across the Deaf Community. Whether it is seeing a GP, attending a hospital appointment, receiving social care services at home, seeking support with housing needs or making a trip to the local library. The NHS and Council were keen to develop the best way to work with people effected by deafness on an on-going basis and the first event was about working together to work out how best to do this.
Across the two events over 40 local organisations and groups were identified who provide support and services to the D/deaf community in Brighton and Hove, from local cinemas to swimming pools, from coffee mornings to schools and social media groups. This was seen as the basis to develop a network and a way to engage people.
At the second event we looked at a range of live scenario’s where the CCG and Council wanted to work more closely with the D/deaf community and used these to develop and test different models of engagement. The following ideas were generated:
  • Establish a D/deaf Services Liaison Forum to talk and share up-coming issues and to oversee the development of working better together with people who are D/deaf – the Forum should be D/deaf led and could meet every other month and be hosted at Hamilton Lodge or at Sussex Deaf Association with involvement from the council, NHS and D/deaf organisations and groups
  • Establish and host a number of linked social media platforms to post issues, raise questions, run polls, surveys and seek feedback – the platforms should be D/deaf led and should have a focus on younger people as well as other age groups and communities of people effected by deafness and be linked to the above Forum
  • Use webinar and text technology as well to ensure maximum engagement in meetings, workshops and discussions
  • Use email and other written methods to communicate too
  • Develop an identity and hashtag for the engagement of people who are D/deaf across Brighton and Hove that can be used in a range of settings and ways including social media platforms such as FaceBook, Snapchat, #Twitter, and Instagram e.g.. D/deaf Brighton and Hove, Brighton and Hove D/deaf Talkback, Brighton and Hove D/deaf people matter
  • Complete the list of organisations and groups with contact names and details – keep this as a living document and database
  • Use the list to invite people to participate in on-going discussions and surveys on social media, text and/or face to face, and via video technology as appropriate
  • Look at work from elsewhere – Healthwatch Leicester and Healthwatch Hampshire have both done work in this area
  • Consider a part time D/deaf led community development worker to help bring the work together
  • Undertake targeted discussions with specific groups on relevant issues, go to where people are meeting already to do this

You can see a copy of the full report here Working Together 2 Final Report.


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